One week ago today, I asked to see her. Yes, you heard me right, her. We named the tumor as a way to separate the struggles we encounter on this road. A good friend of ours and role model mentioned it in passing the other week that her husband and her separate Jan wants vs. MS wants as a way to keep frustration at bay. This, of course, was another gift from God as it was two days prior to D spurring her nasty ways. Brad wanted to cook me dinner after a long day, but D bucked up and prevented it. It is easier to accept the hardships when you think of D as an unwelcome guest in our marriage.

Again, you heard me, our marriage went from three (God, Brad and me) to four now that D has decided to join. I have heard a lot about what D might be and a lot about what she is not, but I wanted to meet her. I wanted to see the exact location that she camped out and how comfortable she had made herself.

This is what I learned from meeting D…

  • Brad’s writing is more profound now than ever before not because of his own talent. Yes, this sounds harsh because he is a brilliant writer, but D is pretty comfy in her reading nook. I have new found appreciation for his writing because it is clearly not easy and he is being guided on what to share. He feels inspired to share his story and he is being guided, I believe by God, on sharing his story.
  • Brad is the most optimistic person I have ever met. D is taking up a good amount of room and I imagine if roles were reversed, I would be complaining about her every moment. He takes her with stride and laughs at her every chance that he gets. Again, God is with us on this one as D alone should be driving a person nuts.
  • She has a big booty and that booty will be evicted one day, just not today. We will wait patiently as we determine who D is and how to gracefully kick her out of our marriage. Until then, we wait and pray. As my brother wrote after hearing the news, “red wine tonight and prayers, prayers and more prayers” This is the perfect plan to deal with D in stride.

I am glad that I met D. She is unwelcomed, big booty and making herself way too comfy, but it shows me how strong my husband and marriage is. We are blessed that throughout our unwelcome guest, we can find joy, share our story and most importantly be given the grace to wait for her eviction. I will celebrate when my marriage returns to normal as it should be; God, Brad and me.

Brad’s snoring use to drive me nuts. So much that I would make jokes about smothering him with our beloved kitten. Now it is a comfort to know one of use is truly asleep. For the past month, our nights have started with pure exhaustion taking over and a wake-up call at an ungodly hour. We have found a sense of norm in our new hours, and taking turns on who is up half the night. I jokingly tell people it is good practice for a newborn baby when the time comes. Read more

Busch Wildlife St Charles Missouri

We are 22 days into this new journey, more needles than I would like to count, meeting our new BFF, CT and MRI at every turn, 2 nights in the hospital and one scar forming. We should be 22 days into the most terrifying journey of our life. 27 years old and faced with a tumor straddling language and reading. My two favorite parts of my husband. The parts that will last when the laugh lines settle in and our family is grown. The parts that matter when you are 80, sitting on the porch and telling stories about when we were kids and newspapers were actually paper!

Here we are 22 days later feeling more blessed today than the last. Stress fades a bit easier and finding the joy seems to come a bit quicker. 22 days of terms we don’t understand and unthinkable outcomes, turned into hundreds of prayers, unmeasurable love and God being everywhere we look.

At first, I am sure people thought we had lost our minds. How could we receive devastating news with unknown around every corner and still smile? How could we handle it with grace and faith that we will be ok? How are you accepting ok might not be the outcome we want? The answer is simple and oh so hard all at the same time.

God took care of us to this point. He prepared us in every way without us ever knowing it. I once heard, when you look into the rearview mirror, you can see how God has gotten you there. Well, when you are analyzing ever moment of your life to determine when the symptoms started and how you are feeling, you get to see the path a little closer up. Honestly though, there is too much good not to think that God will carry us through.

As I have since watching my entire future get whisked away into an ambulance, I pray not for my own desires, but to be given the peace and strength to accept God’s will. Something that is hard for a stubborn woman like me.

When faced with tragedy, you can ask why me or be thankful for what you have. Brad and I chose to be thankful for each other, our faith, family and friends. Thankful to love a bit fuller and get to do this crazy journey which some think is incredible grace and we now call life.

Busch Wildlife | St. Charles, Missouri

Busch Wildlife in St. Charles County, Missouri is one of my favorite local places to take landscape photos. Busch Wildlife consists of 6,987 acres of forest, grassland, cropland, old fields, open prairies, wetlands and over 550 acres of fishable lakes and ponds – all of which can be easily accessed by beautiful, winding gravel roads.

Busch Wildlife is owned by the Missouri Department of Conservation and is known for its hunting, fishing, boat rentals, fishing docks, picnic areas, hiking trails, staffed firearms range, archery range, five viewing blinds and visitor center.

Busch Wildlife Contact Information

Office Number & Hours:
636.441.4554 | 8am-5pm Monday through Friday.

Address:
2360 Highway D
St. Charles, Missouri 63304 Read more

There is no passion to be found in playing small—in settling for a life that is less than you are capable of living.- Nelson Mandela

I am taking a big leap of faith and no longer playing it small. Next Monday, the next chapter of my BJC Career book will begin as the newest project manager for the Patient Experience Team at Barnes-Jewish Hospital. I am following my passion and will start living the life that I am capable of! It might even be a stretch goal. 🙂

The only way to do great work is to love what you do. If you haven’t found it yet, keep looking. Don’t settle. -Steve Jobs

My passion and love have always been with the work that this team does. On my first day at Barnes-Jewish, five years ago, I knew it was something special. They care for the patients in a unique way. While the one-on-one interaction is important, the larger scale and influence to move the needle forward for all who walk through the hospital doors from patients to visitors to employees will change our culture and lives. I will get to be part of this team focusing on how to make what could be the worse day of your life, a little better. What a blessing and the closest I will ever get to doing God’s work by taken care of the least of His people.

Certain things catch your eye, but pursue only those that capture the heart.- Ancient Indian Proverb

My heart has been in this space for five years. Last time, I worked with them, I was inspired to grow and help others grow. At the time, I had the unique privilege of transporting guests to whimsical places to learn how to better care for our team members and patients. Read more

Winery in Tuscany

The Story Behind The Photo

This beautiful view is a reminder for me to stay positive and look for the beauty in every situation.

While headed up this gravel road to a winery in Tuscany, the van we were riding in began to struggle. Soon the van lost traction and stalled. Unable to get moving again, our driver tried rolling backward down the hill to a less steep portion of the hill. We all exited the van to make it lighter and after a small collision with a pole and a few minutes of pushing, we had the van moving up the hill again. The van made it to the top of the hill and we began hiking up after it. Read more

Klondike Park, St. Charles County

The Story Behind The Photo

This photo was taken at Klondike Park in St. Charles County on Nicki’s birthday. Nicki likes to take her birthday off of work, and always seems to convince me to do the same. This year, Nicki, our friend Jaclyn and myself headed out to Augusta, Missouri for an afternoon at the wineries. We spent our afternoon sitting in the sun and sipping wine on the patio at Montelle Winery. To be honest, perhaps a little too much wine for Nicki and way too much sun for Jaclyn and myself.

After the winery, we stopped by Klondike Park for one of the most scenic views in the St. Louis area. The overlook can be accessed by hiking up the paved pathway near the Curt Loupe Conference Center. The entire park is beautiful, but this area provides amazing backdrops for photos – including this one. Read more